Summary
Aboriginal and Torres Strait Islander people are under-identified in many health-related data collections. Self-report in response to the standard Indigenous status question is the most accurate means of ascertaining a client’s Indigenous or non-Indigenous status.
The development of the best practice guidelines
- The Best Practice Guidelines document the recommended national approach for collecting and recording accurate information on the Indigenous status of clients.
- The guidelines were informed by a review of previous research into Indigenous under-identification in administrative data collections, consultation with key stakeholders, service providers, health authorities and data custodians for the range of key health data collections covered by the guidelines.
- The guidelines address the need for a more systematic national approach to ensure the standard Indigenous status question is asked correctly and consistently of all clients of health services, and that this information is recorded properly.
- They comprise three parts—Part A: Asking the question, Part B: Recording responses and Part C: Putting the guidelines into practice.
Other recommendations
- This report also includes recommendations for supporting the implementation of the Best Practice Guidelines through staff training, as well as data quality assurance strategies for service providers and data custodians.
- The report notes the need to promote guidelines widely so that their use becomes routine across various service provision settings and client groups.
The promotion of these guidelines needs to address prevailing beliefs and attitudes amongst both staff and clients of health services that may undermine best practice at the point of data collection. - The Council of Australian Governments (COAG) National Indigenous Reform Agreement sets out a timeline for all jurisdictions to complete implementation of the guidelines by December 2012.
- The AIHW’s National Indigenous Data Improvement Support Centre (NIDISC) has been established to support jurisdictions and service providers to implement the guidelines.
Introduction
- The collection of Indigenous status
- The development of the best practice guidelines
- Structure of this report
Best practice guidelines
- Part A: Asking the question
- Part B: Recording responses
- Part C: Putting the guidelines into practice
Recommendations to support the best practice guidelines
- Recommendations for staff training
- Recommendations for data quality assurance and validation
Promoting the best practice guidelines
- Dissemination and ongoing support
- Evaluation
- Further research
Appendix A:
Aboriginal and Torres Strait Islander identification in national health data collections (249KB PDF), (254KB RTF)
Appendix B:
An overview of the under-identification of Indigenous Australians in administrative data collections (135KB PDF) (234KB RTF)
Appendix C:
The five stages of the Best Practice Guidelines project (87KB PDF), (168KB RTF)
Appendix D:
Report on the flow of Indigenous status information in six health data sets (234KB PDF) (without data forms), (with data forms (4.8MB PDF zipped)
- Data collection forms
- Example of perinatal state/territory data collection form: New South Wales midwives data collection form (201KB PDF)
- Example of state/territory birth registration form: Queensland birth registration application form (1.1MB PDF)
- Bettering Evaluation and Care of Health (BEACH) national morbidity and treatment survey form (for general practitioners) (235KB PDF)
- Medicare application form (2.1MB PDF)
- Medicare copy/transfer application form (1.2MB PDF)
- Example of state/territory mortality data forms: Queensland death registration application form (1.4MB PDF)
- Queensland burial notice and cremation notice forms (562KB PDF)
- Queensland cause of death certificate (and perinatal supplement) form (1.6MB PDF)
- Queensland autopsy certificate form (264KB PDF)
End matter: Acknowledgments; References