Table of contents
- Contents
- Introduction
- Background
- Privacy issues
- Principles for use of identified records
- Principles for use of records containing statistical linkage keys
- Principles for the use of unique patient identifiers
- Principles for the use of encrypted unique patient identifiers
- Appendix A
- Guidelines for the use of unique patient identifiers for data linkage
- Minimisation of potentially identifying information
- Supervision of the use of data
- Data editing
- Subsequent use and destruction of data sets 10
- Appendix B
- Model for cross-jurisdictional data linkage for medical research
- Proposed approach
- Linkage key file
- Linked de-identified data
- Ethics approval