Table of contents
- Preliminary material
- Title and verso pages
- Contents
- Acknowledgments
- Abbreviations
- Summary
- Body section
- 1 Introduction
- 1.1 Background
- 1.2 Policy context
- 1.3 National agenda for data linkage
- 1.4 Related data linkage projects
- Building national linkage capability to the AEDC project
- Proof of Concept project 3
- Transforming Education and Training Information in Australia
- National Education Data Linkage Roadmap
- 1.5 Structure of this report
- 2 The National Early Childhood Development Researchable Data Set
- 2.1 Aim, value and benefits
- Aim of the NECD RDS
- Benefits to governments, policy makers and program developers
- Benefits to the public
- Questions that the NECD RDS may help answer
- 2.2 Scope and design
- Research foundations of the NECD RDS
- Data to be included
- Documenting available data
- 2.3 Data linkage
- Practice and protocols
- Protecting privacy
- 2.1 Aim, value and benefits
- 3 Governance framework for the researchable data set
- 3.1 Privacy considerations
- AIHW legislative framework-privacy and confidentiality
- 3.2 Ethical considerations
- Human Research Ethics Committees
- AIHW Ethics Committee
- 3.3 Stakeholder engagement
- 3.4 NECD RDS Advisory Committee
- 3.1 Privacy considerations
- 4 Challenges and progress in establishing the researchable data set
- 4.1 Challenges encountered
- Stakeholder engagement
- Jurisdictional linkage capabilities
- Ongoing nature of the NECD RDS
- Changes to process for generating linkage keys
- Privacy constraints for preschool data
- Incomplete data
- Barriers to obtaining data
- Other data linkage projects
- 4.2 Obtaining permission to use data for the NECD RDS
- Commonwealth data sets
- Jurisdictional data sets
- Summary of progress
- Receiving data for inclusion in the NECD RDS
- Supply and updating of data
- 4.1 Challenges encountered
- 5 Moving forward
- 5.1 Where are we now?
- 5.2 Next steps
- 5.3 After the NECD RDS is established
- Stakeholder consultations and meetings
- Access to the NECD RDS
- Updating the NECD RDS
- Data analysis
- METeOR
- End matter
- Appendixes
- Appendix A: Childhood development research
- A.1 The review process
- A.2 Results of mapping
- Appendix B: Data sources to support the NECD RDS
- B.1 Data included in the NECD RDS
- B.2 Data to support the NECD RDS
- Appendix C: Data items for inclusion
- Appendix D: Processes to construct the NECD RDS
- D.1 Linking data to construct the NECD RDS
- D.2 Merging content data for the NECD RDS
- Appendix E: Guide for researchers
- E.1 Access to data for researchers
- E.2 Access options
- E.3 AIHW contact details
- Appendix A: Childhood development research
- Glossary
- References
- List of tables
- List of figures
- List of boxes
- Appendixes