The APEG dataset contains information on young people with insulin-treated diabetes aged 0–14 years at the time of diagnosis. As insulin-treated type 2 diabetes is rare in children under 15 years old, most of the children and adolescents listed on the APEG dataset have type 1 diabetes.

APEG data are primarily used by the AIHW (together with National Diabetes Services Scheme (NDSS) Registrant data; NDSS Sales data and National Death Index (NDI) data) to create the National (insulin-treated) Diabetes Register (NDR).

The collection of the APEG data by AIHW ceased in 2022.

Collection details
Variables to support reporting and linkage
  • Age (Date of birth)
  • Sex/gender
  • Indigenous status

Temporal coverage 

from 1/1/1999 to 31/12/2021

Geographical coverage

National and State

Data availability

Client specified tables on request which may be subject to data provider approval (charges apply).

Restricted unit record access subject to Ethics Committee approval and/or the agreement of all relevant data custodians in all states and territories (charges may apply).

Data scope 

Incident cases of insulin-treated diabetes in young people aged 0–14 years at the time of diagnosis, 1999–2016, Australia. Due to concerns about the coverage of data in 1999, most reporting begins in 2000.

Methodology 

Official

Metadata information and data quality statement (DQS)

The National (insulin-treated) Diabetes Register 2021 DQS
(METEOR 768933)

Contact

[email protected]

*Data collection with restricted access