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released: 18 Aug 2009 author: AIHW

The Department of Health and Ageing (DoHA) commissioned AIHW to undertake this study to investigate and document the scope, feasibility and utility of setting up a Carers National Data Repository (CNDR). The CNDR is conceived as a way of improving the evidence available about carers using existing data which would mitigate issues arising from scattered evidence by bringing data together, standardising metadata and analysing data in more integrated ways (including through the use of data linkage) to inform important policy and research issues.

ISBN 978 1 74024 946 1; Cat. no. AGE 59; 66pp.; Internet only

Full publication

Publication table of contents

  • Preliminary material
    • Verso and title page
    • Contents
    • Acknowledgments
    • Abbreviations
    • Summary
  • Body section
    1. Background
      • 1.1 The scoping study
    2. Key research and policy issues
      • 2.1 Scan of recent literature
      • 2.2 Stakeholder consultations
    3. Scope and feasibility of possible CNDR
      • 3.1 Sources of carer data
      • 3.2 Data issues
    4. Possible models for a CNDR
      • 4.1 Metadata repository/data portal/data directory
      • 4.2 Decentralised virtual hub
      • 4.3 Centralised physical repository
    5. Case study: exploring the use of respite care using multiple data sets
      • 5.1 How many carers use respite care services?
      • 5.2 Source of respite care services
      • 5.3 Why is respite care not being used?
      • 5.4 The case study and CNDR models
    6. Conclusions and future directions
      • 6.1 Usefulness of a CNDR
      • 6.2 Scope of CNDR
      • 6.3 Feasibility of CNDR
      • 6.4 Future directions
  • End matter
    • Appendix 1: Data mapping
    • Appendix 2: Review of current provisions and policies
    • References

Recommended citation

AIHW 2009. Carers National Data Repository scoping study: final report. Cat. no. AGE 59. Canberra: AIHW. Viewed 24 September 2014 <http://www.aihw.gov.au/publication-detail/?id=6442468274>.