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released: 19 Nov 2004 author: AIHW

This report was prepared by the AIHW with guidance from the Palliative Care Information Development Working Group. It explores issues associated with current data collection in the area of community based palliative care provision and recommends strategies leading to the collection of nationally comparable information.

ISBN 978 1 74024 417 6; Cat. no. HWI 77; 229pp.; $26.00

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Publication table of contents

  • Preliminary material (206K PDF)
    • Title and verso pages
    • Contents
    • List of tables
    • List of figures
    • Acknowledgments
    • Abbreviations
    • Executive summary
    • Purpose
    • Main findings
    • Recommendations
  • Sections
    1. Introduction (208K PDF)
      1. Background
      2. The Palliative Care Information Development project
    2. Data collection systems (184K PDF)
      1. Current systems
      2. Future directions
    3. Current data reporting (224K PDF)
      1. Reporting in each state and territory
      2. Mapping of data items
      3. Other possible sources of palliative care data
    4. Consultation with service providers (173K PDF)
      1. Approach
      2. Background/discussion paper
      3. Outcomes of the consultation
      4. Providers' suggestions on quality of care indicators
      5. Lessons from the consultation feedback
    5. Feasibility and performance monitoring (195K PDF)
      1. Purpose
      2. Scope
      3. Data items for collection
      4. Collection mechanisms
      5. Timeframe
      6. Evaluation and performance indicators
    6. A national community-based palliative care data collection (285K PDF)
      1. Proposed characteristics of a national data collection
      2. Recommended data set and draft definitions
      3. Strategies for data collection and transfer
    7. Options and recommendations for future national data collection (233K PDF)
      1. A way forward
      2. Other options considered
  • End matter
    • Appendix (362K PDF)
      • Appendix A: Palliative Care Intergovernmental Forum-Information Development Principles
      • Appendix B: PalCID WG members
      • Appendix C: Data collection systems
        • Australian Capital Territory
        • New South Wales
        • Northern Territory
        • Queensland
        • South Australia
        • Tasmania
        • Victoria
        • Western Australia
      • Appendix D: Mapping exercise
      • Appendix E: Service provider feedback sheet
      • Appendix F: National Health Performance Framework
      • Appendix G: Reporting requirements and sample reports provided by some States and Territories (337K PDF)
      • Appendix H: Data definitions (373K PDF)
      • Glossary (156K PDF)
      • References

Recommended citation

AIHW 2004. National palliative care information collection: a way forward for community-based palliative care. Cat. no. HWI 77. Canberra: AIHW.

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