AIHW Board AIHW senior staff Annual report Capability statement Collaboration AIHW corporate plan 2016–17 to 2019–20 Customer care charter FOI - freedom of information Indexed list of files Nous review Organisation chart Presentations Privacy of data Public Interest Disclosure Tenders
By category Ageing, disability & carers Families & children Hospitals Housing & homelessness Indigenous Australians Population groups Risk factors, diseases & death Services, workforce & spending
By subject Adoptions Aged care Ageing Alcohol & other drugs Arthritis & musculoskeletal conditions Asthma Australia's health Australia's welfare Burden of disease Cancer Cardiovascular disease Child health, development & wellbeing Child protection Children's services Chronic diseases
Chronic kidney disease Chronic respiratory conditions COPD Deaths Dementia Dental & oral health Diabetes Disability Expenditure Eye health Food & nutrition Health indicators Health performance Homelessness Hospitals Housing assistance Indigenous Australians Injury Life expectancy
Male health Mental health Mothers & babies Overweight & obesity Palliative care services Population health Primary health care Prisoner health Risk factors Rural health Safety & quality of health care Veterans' health Workforce Youth health & wellbeing Youth justice
In other sections Data Publications Contact AIHW
Publications CatalogueOrdering publicationsForthcoming publications Online reports Subscribe to release notices
By subject Adoptions Aged care Ageing Alcohol & other drugs AIHW annual reports Arthritis & musculoskeletal conditions Asthma Australia's health Australia's welfare Burden of disease Cancer Cardiovascular disease Child health, development & wellbeing Child protection Children's services Chronic diseases Chronic kidney disease
Chronic respiratory conditions Corporate publications Data linkage Data standards Deaths Dental & oral health Diabetes Disability Expenditure Eye health Food & nutrition General practice Health indicators Health performance Homelessness Hospitals Housing assistance Indigenous Australians Indigenous housing
Injury Life expectancy Male health Mental health services Mothers & babies Overweight & obesity Palliative care Population health Primary health carePrisoner health Risk factors Rural health Safety & quality of health care Veterans' health Workforce Youth health & wellbeing Youth justice
In other sections Subjects Data Contact AIHW
About AIHW data METeOR—metadata online registry Data by subject AIHW data collections Customised data analysis request Data governance framework Data linking Data standards GovHack Privacy of data Accessing Australian Government health and welfare data
By subjectAboriginal and Torres Strait Islander Health Performance Framework Adoptions Aged care Alcohol and other drugs Alcohol data sources Body weight data sources Cancer Children's headline indicators (CHI) Child protection Data sources for monitoring health conditionsDeaths Diabetes Disability
Expenditure FHBH - Fixing houses for better health General Record of Incidence of Mortality (GRIM) books Height and weight data sources Hospitals Indigenous Australians International collaboration Maternity Information Matrix (MIM) Medical indemnity Mental health Mortality Over Regions and Time (MORT) books National Aged Care Data Clearinghouse
National core maternity indicators (NCMI) National framework for protecting Australia’s children (NFPAC) National indicator catalogue National Youth Information Framework (NYIF) Perinatal data Primary Health Network (PHN) Specialist Homelessness Services (SHS) Tobacco data sources Workforce
In other sections Subjects Publications Contact AIHW
ACFADD AHSAC AIHW Board AIHW Ethics Committee AODTS NMDS WG Cancer CKDMAC CVDMAC HEAC
IGIHM JJ RIG MHISSC NAGATSIHID NCSIMG NDDWG NDIMG NHISSC NIAG NIRAPIMG NMDDNMDS
NMHPSC NOPSAD NPDDC NPHEP NPHIC PCDWG PDWG PHIDG PHIG REDWG Workforce committees
Education worksheets Infographics What's in the pipeline Subscribe to education notices Other educational links
Resources by subject All Latest Ageing Australia's health Australia's welfare Carers
Children & youth Disability Disease Drugs
Health Health prevention Indigenous Australians Injury
In other sections Subjects Data Publications Contact AIHW
Job vacancies How to apply for a position at the AIHW Conditions of employment Benefits of working for the AIHW Temporary employment register Occupational Training Program Contact the People Unit Graduates
AIHW Access magazine Media releases Subscribe to release notices Embargoed access to AIHW material Media contacts
You are here:
On this page
In Australia, cancer is a notifiable disease (with the exception of non-melanoma skin cancers). This means it is a legal requirement in all Australian states and territories for all new cases of cancer (excluding non-melanoma skin cancers) to be reported and recorded (registered). Information on newly diagnosed cancers is collected as an individual moves through cancer detection, diagnosis and treatment. Each state and territory cancer registry receives information from a variety of sources, including hospitals, pathology laboratories, radiotherapy centres and registries of births, deaths and marriages.
Improvements in cancer control cannot be made without the latest clinical data and statistics. The AIHW, through the National Centre for Monitoring Cancer (NCMC) makes available a broad range of cancer statistics and publications to assist the Australian government and others in determining the burden associated with cancer among the Australian population.
The information collected and analysed by the NCMC, is used to:
Cancer registries hold identifying information about individuals diagnosed with cancer, including name, address and date of birth. These data are important to ensure that complete information about each incident case of cancer can be collected. This information is provided to the AIHW as part of the ACD.
There are a number of physical, computer, legislative and data governance arrangements in place within the AIHW to ensure privacy in relation to the ACD. These systems ensure that:
Source: adapted from the NCSCH 2013 protocol.
The primary source of national cancer incidence data is the Australian Cancer Database (ACD) which contains records of all primary, malignant cancers (except basal cell and squamous cell carcinomas of the skin) diagnosed in Australia since 1982. The ACD is held by the NCSCH and is the principal dataset used in reporting by the NCMC.
The Australian Cancer Incidence and Mortality (ACIM) books are Excel workbooks which provide summary statistics and raw data for major cancers for incidence from 1982 and mortality from 1968.
Data quality statement: Australian Cancer Database
The primary source of national cancer mortality data is the National Mortality Database (NMD). The NMD is held by the AIHW and is the principal dataset used in reporting cancer as a cause of death.
The General Record of Incidence of Mortality (GRIM) books are Excel workbooks containing mortality data on selected causes of death by age and sex for each year.
The National Death Index (NDI) is held by the AIHW and is the principal dataset used for mortality data linkage (data integration) to produce cancer prevalence and survival data.
Data for the three national population screening programs (the National Bowel Cancer Screening Program, BreastScreen Australia, and the National Cervical Screening Program) are held by the AIHW. These datasets are the principal source of data on population screening for cancer in Australia.
Data quality statement: National Bowel Cancer Screening Program screening data
Data quality statement: BreastScreen Australia data
Data quality statement: Cervical screening data
The National hospital morbidity database (NHMD) is a collection of summary records for episodes of care (separations) in Australian public and private hospitals. It is the primary source of information on cancer hospitalisations and treatment.
The National hospital morbidity data cubes contain information on the principal diagnoses, procedures and diagnosis related groups of patients admitted to Australian hospitals, sourced from the NHMD.
The Medicare Benefits Schedule is a payment data system that records medical services, tests and procedures funded under the Medicare Benefits Scheme for which a claim for payment is made. This is the main data source for information on those cancer-related detection and diagnostic tests, treatments and other services funded under the Scheme. It does not contain diagnosis or other outcome information from diagnostic tests. More information, and access to these data, is available from the Department of Human Services: Medicare Item Reports.
The AIHW is able to make available a broad range of cancer statistics on a cost-recovery basis. For information on requesting these data, see requesting additional cancer and screening data.